Category Archive: Registry

Living Donor Registry

Kidney Donors’ Risk of End-stage Renal Disease – AGAIN

Recently, a media blitz heralded the arrival of an end-stage renal disease prediction calculator for potential living kidney donors, backed up by a prestigious publication in the New England Journal of Medicine. I glanced at the study, noticed that it used the “woefully incomplete” and “useless” OPTN database, and it only pulled living kidney donors …

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Permanent link to this article: http://livingdonorsarepeopletoo.com/kidney-donors-risk-of-end-stage-renal-disease-again/

Why Transplant Centers Have Incomplete Living Donor Follow-up

  The authors examined the follow-up data on living donors who donated in 2008-2012 using the 2013 (or new/current) standards.   “Complete follow-up at 6, 12, and 24 months was 67%, 60%, and 50% for clinical and 51%, 40%, and 30% for laboratory data, respectively, but have improved over time.” “Donor risk factors for missing …

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Permanent link to this article: http://livingdonorsarepeopletoo.com/why-transplant-centers-have-incomplete-living-donor-follow-up/

Letter to Editor: Where’s the Care for Living Donors?

[note: is it sad that I’m more impressed/surprised/pleased a newspaper actually published this than I am about what was said?] Letter to the editor: ‘Heroic’ organ donors need aftercare It is gratifying that Gary Rutter received a long-awaited kidney and that Hallie Twomey has found solace in donating one of hers (“Six linked patients, three …

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Permanent link to this article: http://livingdonorsarepeopletoo.com/letter-editor-wheres-care-living-donors/

Living Kidney Donors Wait Listed for Kidney Transplants Keeps Growing

In my last post, I promised I’d get you some updated wait listed living kidney donor numbers and here they are: As of December 31, 2012, 324 living kidney donors have been wait listed in need of their own kidney transplant.*   I wrote three in-depth posts regarding this very subject back in July 2011, using …

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Permanent link to this article: http://livingdonorsarepeopletoo.com/living-kidney-donors-wait-listed-for-kidney-transplants-keeps-growing/

Ten Year Kidney Donor Data Causes a Scandal

Recently, I posted information from the Swiss Living Donor Registry on the health and well-being of kidney donors ten years post-donation. Well, it seems that the researchers at the registry, who owe their paychecks and employment to the Swiss government, are more than a little ticked off about their numbers being made public. As I …

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Permanent link to this article: http://livingdonorsarepeopletoo.com/ten-year-kidney-donor-data-causes-a-scandal/

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