Category Archive: Living Donor Misinformation

living donor misinformation and propaganda

Risks of Being Born With Solitary Kidney

When the long-term risks of donating a kidney are discussed, too often someone will bring up that folks born with one kidney are ‘fine’. So I wanted to share this:   Children with a solitary kidney (SK) have an increased long-term risk of hypertension, albuminuria and glomerulosclerosis.   A two-kidneyed person relinquishing a kidney is …

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Permanent link to this article: http://livingdonorsarepeopletoo.com/risks-of-being-born-with-solitary-kidney/

U.S. Transplant Centers’ Informed Consent Forms Are Deficient

The authors examined written informed consent forms from 148 U.S. transplant centers to assess their compliance with OPTN and CMS regulations passed in 2007.   Results:  …most centers’ evaluation consent forms do not include all CMS and OPTN requirements. Multiple items balancing donor and recipient interests and confidentiality were omitted. In addition, information about payment …

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Permanent link to this article: http://livingdonorsarepeopletoo.com/u-s-transplant-centers-informed-consent-forms-are-deficient/

Media Coverage of Living Donation

In a group (supposedly) for living organ donors, a person who serves as a kidney broker*, helping would-be recipients locate willing stranger donors, deluges the membership with the ‘happy’ donor stories so prolific in the news. One of the more recent quoted the kidney saying that donating ‘was no big deal’. I remarked with these …

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Permanent link to this article: http://livingdonorsarepeopletoo.com/media-coverage-of-living-donation/

The Subtleties of Informed Consent

The Bioethics Discussion Blog has a nice post on ‘nudging’ during Informed Consent (the post which was copied to the American Journal of  Bioethics website, which is where I picked it up): http://bioethicsdiscussion.blogspot.com/2013/06/nudging-informed-consent-toward-one.html   The author’s example: 1)  “You may have the lump simply biopsied under local anesthesia with negligible risks from the procedure rather …

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Permanent link to this article: http://livingdonorsarepeopletoo.com/the-subtleties-of-informed-consent/

“Give Us Your Kidneys!” Says the Sunshine State

LKD wordle-1

Back in 2010, California’s legislature bought into Steve Jobs’ charisma and passed the nation’s first living kidney donor registry. Not the type of registry we donor activists are fighting for, the type that would collect data about living donors’ health and well-being after donation, but a government approved list of folks who would be willing …

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Permanent link to this article: http://livingdonorsarepeopletoo.com/living-donor-propaganda-from-the-sunshine-state/

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