Want to be Immortal? Support this art installation

When I was a fledgling adult, I spent too much time trying to decide between the creative and social justice parts of my personality. It was a revelation to me when someone said “The best art changes the world”.

So I’m taking a moment today to help promote a project I think is really great, by an artist with a fierce spirit.

http://www.artprize.org/cheryl-frey-richards/2012/i-am-immortalized

 

“Everyone wants to be immortalized…here is your chance… This piece consists of 100 different portraits of real people and their story in their own words. Each portrait measures 8×8″ and is painted in a pop comic style. Each painting is as unique as the person/people it portrays. We are all heros to someone and we all deserve our lives to be remembered. Even if we only touch the lives of one person, we are still ripples in the pond. The above photos are mock-ups of the project. Each portrait is hand painted by me and each person portrayed has given consent to be apart of the piece. No last names are used.”

 

Consider having your portrait painted and your story told. Or just consider kicking in a few bucks to make the project a reality:
http://www.kickstarter.com/projects/806823851/i-am-immortalized-portrait-installation-project

Permanent link to this article: http://livingdonorsarepeopletoo.com/want-to-be-immortal-support-this-art-installation/

Hey Fatties, Lose Weight So We Can Have Your Kidney Already!

Saw this headline this morning, the official press release from North Shore-Long Island Jewish (LIJ) Health System:

“Researchers discover that obesity hinders kidney donation” (here)

 

…of 104 potential living kidney donors, 23 (22 percent) donors were classified as morbidly obese, only three (13 percent) of whom were able to successfully lose weight and donate their kidney…

Morbidly obese patients are generally excluded as [living] organ donors given their increased risk for complications during operation and the development of chronic conditions linked to obesity (i.e., type 2 diabetes, heart disease, etc.).

 

Sounds reasonable, enough. But then…

A quote from one of the researchers, Mala Sachdeva, MD, assistant professor of medicine at the Hofstra North Shore-LIJ School of Medicine and researcher at the Feinstein Institute for Medical Research (emphasis mine):

“As a next step, we must conduct larger studies that assess how vast a problem this is on a national level and determine how best to expand our living donor pool for kidney transplantation…” 

 

Did she just say that obesity is a problem not because of correlated health risks (and public health consequences) but because it prevents her and her compatriots from harvesting kidneys?

 

“Due to kidney shortages, there must be tangible efforts made to increase the donor pool. Perhaps potential donors who are excluded from donation due to their high BMI should participate in more stringent weight loss programs, check in much more regularly at their transplant center for follow ups, and even join social support groups as a means of motivation. Something needs to be done to increase the number of live donors…

 

Yeah, that’s exactly what she said.

 

I browse for different coverage of the same study, and find this:

“Obesity May Contribute to Organ Shortage” (here)

 

The first line:

The pool of potential living kidney donors may be shrinking because of the national obesity “epidemic,” researchers said here.

 

Less offensive, but pretty much the same thing.

 

This time we’re treated to a quote from the President of the National Kidney Foundation, the same organization who has been trying to convince the world their sole priority isn’t just getting more kidneys for transplants, but that they’re concerned about living kidney donors’ well-being too:

“As the kidney transplant waiting list grows, there is a great need for living donors,” [Lynda] Szczech said in the statement. “As a community, we need to identify ways to overcome this barrier {obesity] so that we can increase our donor pool and end the wait for transplant.”

 

So let’s say these folks lose enough weight to pony up a kidney. 80% will gain it back within 2 years. 2/3 gain back more within 4/5 years then they initially lost*.

And you know what’s worse than a morbidly obese potential kidney donor? A morbidly obese person with compromised kidney function and no renal reserve.

Are Sachdeva and Szczech (and their ilk) willing to monitor these kidney donors for the rest of their lives? Will they commit their resources to ensuring the donors maintain their weight, and their health, so they don’t die an early death due to diabetes, heart disease or kidney failure?

Considering the 60 year history of living donor neglect in the US, it’s safe to say probably not.

 

I’ve often wondered if members of the transplant industry realize how asinine they sound when they make statements like this. Like the folks who’ve spent their entire (indeterminately long) lives in the back hills of some god-forsaken state, and who consequently spew racial and ethnic slurs like the civil rights movement never happened, are these doctors so isolated from the consequences of their actions, so privileged, that they see nothing wrong with reducing the public to nothing more than walking kidney incubators?

Well – when the sentiments are included in widely distributed press releases, I’d say unfortunately so.

 

*google for source material

 

 

Permanent link to this article: http://livingdonorsarepeopletoo.com/hey-fatties-lose-weight-so-we-can-have-your-kidney-already/

Wait List Watch 2012, #2

73, 141: Active wait list candidates, May 11, 2012.

 

Prior counts:

January 30, 2012: 72,428

December 29: 72,656

November 28: 72,625

October 18: 72,642

August 23: 72,318

Aug 4: 72,400

July 20: 72,345

July 10: 72,360

 

 

Permanent link to this article: http://livingdonorsarepeopletoo.com/wait-list-watch-2012-2/

Cue the Intermission Music

I’ve been up to my neck in another project recently (not the bathroom, although – sheesh), which has taken away from the blogging.

Meanwhile, familiarize yourself with the latest OPTN proposed policies. Deadline for public comment is June 15, 2012.

 

http://optn.transplant.hrsa.gov/policiesAndBylaws/publicComment/proposals.asp

Permanent link to this article: http://livingdonorsarepeopletoo.com/cue-the-intermission-music/

Guess What Liver Donors – It’s All in Your Head!

I stumbled upon this by accident this morning while browsing for something else. Unfortunately I couldn’t access the entire text, but the abstract makes the point well enough.

 

12 live liver donors, 9 men and 3 women, were follow-up up at six months and one-year post surgery.

 

Results:
- Functional abdominal complaints (FAC) occurred in 11/12 at 6 months, and 9/12 at 12 months.
- Abdominal pain occurred in seven/12 and six/12 patients, respectively.
- Irritable bowel syndrome (IBS) was found in the majority of patients.

 

Conclusions (emphasis mine): FAC and pain seemed to indicate a general postoperative disorder, of a psychosomatic character, and not connected with removal of part of the liver and gallbladder in particular. However, the occurrence of IBS and FD should merit attention, as they are known to impair quality of life.

 

Just in case you missed it: even though 92% of the liver donors reported problems at six months, and 75% at 12 months, it can’t POSSIBLY be the result of the incredibly invasive and delicate procedure to remove 60-75% of the liver (and gallblader, according to the abstract). Of course not. It has to be imaginary, concocted, and made up. Because if it isn’t then we, the transplant industry, will actually have to start paying attention to these liver incubators as, you know, PEOPLE, and we wouldn’t want that now would we?

*head/desk*

 

Søndenaa K, Gondolesi GE, Roayaie S, Goldman JS, Hausken T, & Schwartz ME (2011). Functional abdominal complaints occurred frequently in living liver donors after donation. Scandinavian journal of gastroenterology, 46 (5), 611-5 PMID: 21114430

Permanent link to this article: http://livingdonorsarepeopletoo.com/guess-what-liver-donors-its-all-in-your-head/

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